Monogenic Diabetes Family Forum
From June 2325, 2016, the University of Chicago Kovler Diabetes Center hosted the Monogenic Diabetes family forum “Celebrating Miracles and Milestones: Our Journey Continues.” Converging from four different countries, over 120 participants gathered in Oak Brook, Illinois to attend the forum. This forum brought together individuals living with various types of monogenic diabetes and their caregivers, to meet other families and increase understanding of genetic forms of diabetes.
Over this three day event, families attended informational sessions, panel discussions, and social events. Informational session topics included:
- Medication management and sick day care
- Optimizing developmental, cognitive and behavioral supports for educational success
- Coping and stress
- Tools and technology
- Accommodations, school issues, 504 plans, and IEPs
- Sessions on specific gene mutations causing diabetes
Experts on diagnosing and caring for patients with monogenic diabetes led the panel discussions. There was an exclusive showing of the international awardwinning documentary produced by the Laurie and Mike Jaffe “Journey to a Miracle: Freedom from Insulin” ( http://journeytoamiraclemovie.com 16 awards and counting!). Social events included a trip to the Brookfield Zoo and a dinner at the “Big Top”, complete with a circus themed dinner and a special appearance by the Jesse White Tumblers. Additionally, children were able to attend Kamp Kovler. Kamp Kovler provided not only a child care service (so parents could attend the workshops) but also fostered the connections between the children and their peers. Over sixty amazing volunteers participated in the success of Kamp Kovler.
Family Support and Online forums
Many of our research participants have elected to join the growing monogenic diabetes discussion groups. These groups offer patients and families an opportunity to ask questions and engage with other patients and families.
Monogenic Diabetes Program Guide
The Kovler Diabetes Center’s comprehensive resource for our Monogenic diabetes patients and their caretakers. Click here to learn more.